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February 28, 2014

TOPIC: Featured News, Patients & Members, Industry

FDA Creates New Web-Based Educational Tool About the Agency

Posted by Mary Dunkle

The Food and Drug Administration’s Office of Orphan Products Development (OOPD), in collaboration with the FDA Center for Drug Evaluation and Research (CDER), has launched a web-based educational tool for rare disease patients, advocacy groups, researchers and industry on various FDA-related topics. (more…)

February 3, 2014

TOPIC: Featured News, Patients & Members, Advocacy

Building on Policy Momentum

Posted by Rose Gallagher

The rare disease community has seen several policy wins in the past few months, some of which may have gone unnoticed. First, in November, Congress passed the National Pediatric Research Network Act as part of the PREEMIE Reauthorization Act. President Obama signed the measure into law on November 27th. (more…)