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October 8, 2018

TOPIC: Medical, Patients & Members

NORD Seeks Proposals for CME Partnership

Posted by Christina Jensen

The National Organization for Rare Disorders is seeking a partner to collaborate on the development of educational resources for medical professionals. NORD has published a Request for Proposals inviting accredited CME providers to respond with proposals by November 16.

 

Celebrating its 35th anniversary… Read More

October 3, 2018

TOPIC: Featured News, Press Releases, Research

Five Years of Patient Registry Success: NORD’s IAMRARE™ Registry Program Celebrates New Partnerships and Models of Engagement  

Posted by Laura Mullen

Washington, D.C., October 3, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today is celebrating five years of patient registry success with the announcement of a new multi-stakeholder model of engagement in collaboration with the Foundation for Prader-Willi Research and Zafgen, Inc.

 

In the rare disease space, with… Read More

September 25, 2018

TOPIC: Featured News, Press Releases

NORD Receives Grant from Anthem Foundation for Expansion of Rare Disease Database®

Posted by Laura Mullen

Washington, D.C., September 25, 2018 – The National Organization for Rare Disorders (NORD) announced today it is enhancing its Rare Disease Database which serves as a valuable source of information for patients, families and caregivers in need of easy to understand language on rare diseases that are frequently misdiagnosed or undiagnosed. The enhancements to the database are… Read More

September 20, 2018

TOPIC: Events, Featured News, Get Involved

Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit

Posted by Christina Jensen

Make your choice from this menu of thought-provoking, informative Lunch & Learn sessions available for attendees of the 2018 NORD Rare Summit. With only 25 days to go, be sure to save your seat at the table by registering for the Summit and choosing your lunch option now! Lunch & Learn sessions have limited seating and will be first-come,… Read More

September 12, 2018

TOPIC: Advocacy, Events, Featured News, Get Involved, Industry, Medical, Patients & Members, Research

Three Big Reasons Not to Miss the 2018 NORD Rare Summit

Posted by Christina Jensen
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