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January 4, 2018

TOPIC: Advocacy, Featured News

NORD Issues Statement in Response to Senator Orrin Hatch’s Announced Retirement

Posted by Christina Jensen

Washington, D.C. – January 4, 2018 – As we celebrate the 35th anniversary of the Orphan Drug Act, we are particularly grateful for the champions responsible for its creation. Today, such gratitude is particularly significant, as one champion, Senator Orrin Hatch, announced this week his intention to retire at the end of 2018. Over his 40 years in the United… Read More

December 21, 2017

TOPIC: Advocacy, Events, Get Involved

Join Us for Rare Disease Day®

Posted by Christina Jensen
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December 20, 2017

TOPIC: Featured News, Medical, Research

NORD Awards Five New Grants for Rare Disease Research

Posted by Christina Jensen

Washington, D.C., December 20, 2017 – The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has announced five grantees of its 2017 Rare Disease Research Grant Program.

NORD’s Rare Disease Research Grant Program provides seed funding to academic scientists for translational or clinical studies related to the… Read More

December 18, 2017

TOPIC: Advocacy, Featured News

NORD Issues Statement in Response to Congressional Consideration of the Tax Cuts and Jobs Act Conference Report

Posted by Christina Jensen

Washington, D.C., December 18, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the upcoming congressional consideration of the Tax Cuts and Jobs Act Conference Report:

“This week, Congress will consider and potentially pass… Read More