As part of the American Plasma Users Coalition (A-PLUS), NORD and several of its member organizations submitted letters to Department of Health and Human Services Secretary Sylvia Mathews Burwell and …
On September 10, the Food and Drug Administration (FDA) notified the National Organization for Rare Disorders (NORD) that it was rejecting NORD’s Citizen Petition submitted in 2011 to request that …
Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard It’s here! As the official sponsor and host of Rare Disease Day in the U.S., NORD …
Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited …
This past week, the National Organization for Rare Disorders (NORD) was named “charity of the week” by The Week magazine. Each charity featured in The Week has earned a four-star …
Today, the Senate introduced the Advancing Targeted Drugs for Rare Diseases Act of 2015 (see press release below). According to NORD President and CEO Peter L. Saltonstall, “NORD supports legislation that …
Today, the FDA released a blog post about a new tool for drug developers. The FDA writes, “With the vast majority of rare diseases still without FDA-approved treatments, we have …