Newsroom and Multimedia

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

If you are a news media professional with a question for NORD, please submit your request using the form here. Please include as much information as possible with your request.

NORD in the News

NORD in Washington Post, January 2016 [hyperlink]

Community News

NORD Press Releases & Statements

hyperlink press release 1

hyperlink press release 2

Additional News

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Media Resources

NORD Owned Logos:

The NORD word marks, sub brands and logos are the sole and exclusive property of NORD. Your use of any word mark and/or logo implies acceptance of, and agreement with, the terms of this policy. If you do not accept and agree to follow the rules as set out in this policy, you do not have the right to use the word marks and/or logos and are prohibited from using them.

Any use of NORD word marks and/or logos not in compliance with this policy is not authorized. If you violate the rules in this policy, you must cease and desist from all use of any NORD word marks and/or logos, regardless of the uses otherwise allowed in this policy.

NORD reserves the right to revoke its approval of your use of the word marks and/or logos at any time.

When downloading and displaying the NORD logos, user agrees to terms outlined in NORD logo policy stated above. For alternate, additional file formats or logo variations, please contact NORD: marketing@rarediseases.org

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The NORD word marks, sub brands and logos are the sole and exclusive property of NORD. Your use of any word mark and/or logo implies acceptance of, and agreement with, the terms of this policy. If you do not accept and agree to follow the rules as set out in this policy, you do not have the right to use the word marks and/or logos and are prohibited from using them. Any use of NORD word marks and/or logos not in compliance with this policy is not authorized. If you violate the rules in this policy, you must cease and desist from all use of any NORD word marks and/or logos, regardless of the uses otherwise allowed in this policy. NORD reserves the right to revoke its approval of your use of the word marks and/or logos at any time.

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