CHARGE Syndrome Foundation, Inc.

The CHARGE Syndrome Foundation, Inc., is a national, non-profit, voluntary agency that was established in 1993. Its mission is to establish, maintain, and distribute information about CHARGE syndrome and provide support to affected families. The foundation supports the dissemination of information about CHARGE syndrome, supports research into its cause and management, and works with other organizations and institutions to accomplish its mission. In addition, the CHARGE Syndrome Foundation hosts a biennial conference for affected individuals, families, physicians, and other professionals such as educators and therapists.