Children’s Fund for Glycogen Storage Disease Research, Inc.
917 Bethany Mountain Road
About Children’s Fund for Glycogen Storage Disease Research, Inc.
The Children’s Fund for Glycogen Storage Disease Research (CFGSDR) is committed to funding research so that children born with glycogen storage disease type I (GSD1) will benefit from early detection, treatment and an eventual cure. It is a public, non-profit, 501(c) 3 foundation established in April of 2002 to make a difference in the lives of children and families affected by GSD1. This disease, also known as Von Gierke disease, is a hereditary metabolic disorder caused by the inborn lack of the enzyme glucose-6-phosphatase. Parents, families, run the foundation and friends of children affected by this disease. All fundraising and administration is done on a voluntary basis.