About Cutis Laxa Internationale
The Cutis Laxa Internationale is a voluntary, non-profit association. They serve a worldwide audience with the mission of breaking the isolation of patients and families affected by cutis laxa, a rare genetic disorder of the connective tissue. Their specific activities include creating a bank of data to support research, raising funds for research, supporting patient networking, and providing information about cutis laxa to medical professionals, the media and other interested parties. Established in 2001, this organization is based in France.