About Dystonia Europe
The Dystonia Europe is a union of national dystonia patient advocacy groups in Europe. ED is a non-profit organization that supports and, where possible, coordinates the work of its member groups to fulfill their three main objectives of providing authorative information, spreading awareness of dystonia, and promoting research. The federation is registered in Belgium and holds an annual General Assembly of member group delegates. The working language is English. The federation also works to establish relations with governmental and other agencies, and with neurological and other specialists of the international medical community.