About Ellis-van Creveld Syndrome Web Site

The Ellis-van Creveld Syndrome Web Site is dedicated to providing parents of children with Ellis-van Creveld syndrome with information, links to other resources, and support. It is also associated with an online support group forum (http://groups.yahoo.com/group/EvCParents/). Ellis-Van Creveld syndrome is a rare genetic disorder characterized by short limb dwarfism, additional fingers and/or toes (polydactyly), abnormal development of fingernails and, in over half of the cases, congenital heart defects. This site may also be helpful to health professionals and other professionals who work with children who have this condition.

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