About FRAXA Research Foundation
The FRAXA Research Foundation is a voluntary, non-profit organization dedicated to providing support for individuals affected by Fragile X syndrome, an X-linked disorder characterized by mental retardation, a large jaw, a high forehead, enlarged testes, and/or other abnormalities in affected males and, in some cases, mild mental retardation in females (heterozygotes). The foundation is also committed to aiding the research efforts of concerned medical professionals throughout the United States. Founded in 1994 by parents of children with Fragile X syndrome, the FRAXA Research Foundation is dedicated to educating public officials and the general population about Fragile X and to supporting ongoing medical research. The foundation works toward these goals by awarding research grants to university-based scientists and physicians whose purpose is to find treatments for Fragile X syndrome and by encouraging the publication of articles to increase awareness of Fragile X syndrome. In addition, the FRAXA Research Foundation puts families with affected children in touch with one another and welcomes questions about this disorder from concerned individuals.