International Pleuropulmonary Blastoma Registry
Children's Hospitals and Clinics of Minnesota
About International Pleuropulmonary Blastoma Registry
The International Pleuropulmonary Blastoma (PPB) Registry is a non-profit organization of physicians, scientists, and data analysts from many institutions who, with the cooperation of families and physicians all over the world, collect and evaluate cases of pleuropulmonary blastoma (PPB). The goals of the PPB Registry are to provide pathologic review, to make treatment recommendations, to dispense information to all families and physicians, to collect clinical data on this disease, to facilitate basic scientific research on PPB, and to publish its observations periodically. Pleuropulmonary blastoma (PPB) is a rare childhood cancer occurring in the chest, specifically in the lungs or in the coverings of the lungs called “pleura”.