PCD/KS Foundation

The PCD Foundation (Primary Ciliary Dyskinesia) is a voluntary, not-for-profit 501(c)(3) patient advocacy foundation that promotes research, increases public awareness, and provides information and support services for individuals and families affected by inherited ciliary disorders. Another name for primary ciliary dyskinesia is Kartagener syndrome. This disease results in a chronic cough, scarring of the airways, and recurrent lung infection as a result of malfunctioning cilia, the tiny, hair-like structures that normally provide protection from unwanted inhaled particles. The PCD Foundation offers information to patients, families, health professionals, and the public. Its services include patient networking, advocacy, research and general education.