PNH Research and Support Foundation

The PNH Research and Support Foundation is a voluntary, non-profit organization dedicated to funding research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH) and to helping PNH patients in need with funding for disease-related expenses not covered by insurance. The foundation also helps to maintain an online support group at www.pnhdisease.org. PNH is a rare, acquired stem cell disorder. The classic finding is the premature destruction of red blood cells (hemolysis), leading to the release of the red blood cell contents into the blood stream which is responsible for many of the symptoms of the disease.