Support Organisation for Trisomy and Related Disorders

About Support Organisation for Trisomy and Related Disorders

The Support Organisation for Trisomy and Related Disorders (SOFTWA) is a non-profit organization that helps families of children affected by trisomy 9 and other rare chromosomal conditions. “Trisomy” refers to the presence of an extra chromosome. Those affected are born with a whole or partial third chromosome rather than the expected two. Trisomy 9 refers to the ninth chromosome. SOFTWA provides information and other support services for families with an affected child.