Support Organization for Trisomy 13/18 and Related Disorders, UK
c/o Christine Rose
About Support Organization for Trisomy 13/18 and Related Disorders, UK
The Support Organisation for Trisomy 13/18 and Related Disorders (SOFT UK) is an international, UK-based organization that serves families affected by trisomy 13/18, related disorders, and rare conditions for whom no other organization exists. SOFT provides support, assistance, and information for families in many different situations and stages of diagnosis, caregiving, and for some, grief. SOFT offers informational packets, booklets, a “link list”networking service, a newsletter, support groups, patient education, advocacy, a journal, a database, and a variety of audio-visual aids. SOFT serves the UK, the USA (in conjunction with SOFT USA), Scandinavia, Europe, New Zealand, and Australia; and through member resources, SOFT supports the English, Italian, French, German, Danish, and Swedish languages.