About The Australian Cystinosis Foundation
The Australian Cystinosis Foundation is a group of individuals concerned with the health and well-being of children, youth and adults living with Cystinosis. The Australian Cystinosis Foundation was formed in 2021 by Rhonda King and Rick Jones, the Grandparents of Oscar, who was
diagnosed with Infantile Nephropathic Cystinosis in January 2021.
The Foundation looks to support individuals and families affected by Cystinosis through awareness, education and advocating for better and more effective medical treatments with the hope of a cure. The foundation is registered in QLD as a not-for-profit charitable organization and endorsed as a Deductible Gift Recipient (DGR Status). A voluntary board of directors provides the overall direction for the foundation with the hope to help support and fund research Nationally and Internationally.