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Mar. 2, 2016

TOPIC: Advocacy, Featured News

NORD Founder Publishes Memoir Detailing Her Tireless Work as Parent-Advocate

Posted by Jennifer Huron

cover-oprhan-drugs-bookOne day, I wish everyone dealing with a rare condition will have access to a treatment. I really hope you will enjoy reading these memories… and learn more about this Global Crusade.” – Abbey Meyers

In her new memoir, Orphan Drugs: A Global Crusade, NORD founder Abbey Meyers shares her lifetime experience as a parent and tireless advocate for people affected by rare diseases.  In the book, she documents the issues that led to enactment of the “Orphan Drug Act of 1983” (ODA), and the extraordinary scientific and industrial progress that ensued, including the development of Orphan Drug legislation in other industrialized countries around the world.  Abbey is considered the primary American consumer advocate responsible for passage of the ODA and her book walks readers through her fight to invoke change in this underserved space.

For more information or to order the paperback book from Amazon, please visit: www.AbbeySMeyers.com.

 

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