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Apr. 5, 2017

TOPIC: Advocacy

NORD Rare Action Network℠ Releases Spring 2017 State Policy Legislative Tracker

Posted by Jennifer Huron

NORD is pleased to share the Rare Action Network’s Spring 2017 State Policy Legislative Tracker.  This document shows, state-by-state, which legislation we are tracking to help improve the lives of people and families with rare diseases.  Together, we are taking action in 42 states and the District of Columbia – up from 30 states and D.C. at the end of last quarter.  Let’s keep going – together, we are strong!  

For questions related to these bills, or regarding other pieces of legislation that are not featured in the Spring 2017 tracker, contact

Sign Up: Join the Action

If you have not already done so, be sure to become a member of the Rare Action Network by joining today.  By signing up to become a member, you will receive NORD’s Advocacy Alerts and information about ways to get involved in your state.


Learn more about the Rare Action Network by visiting


One Response to “NORD Rare Action Network℠ Releases Spring 2017 State Policy Legislative Tracker”

  1. We are going to be In Sacramento CA to promote Awareness on a resolution to recognize World CDG Awareness Day. CDG is a group of rare diseases of Glycosylation. Here is the event information: