Feb. 6, 2018
Posted by Valaree DonFrancesco
Washington, D.C., February 6, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today joined 37 patient and provider organizations in sending a letter to the House of Representatives in opposition to the Right to Try Act.
NORD supports all patients with serious and life-threatening diseases gaining access to potentially lifesaving treatments, but the Right to Try Act simply will not accomplish this goal. Not only will it not increase access, and it may possibly harm patients by exposing them to bad actors looking to profit off of false hope. Rather than move forward with Right to Try, we are asking Congress to consider alternative legislation that will genuinely and safely increase access to investigational therapies. We are extremely grateful to all those organizations that joined us and lent their voice.
We will continue to make our voices heard as Congress considers the Right to Try Act, and please stay tuned for further updates.
To view or share the letter in its entirety, please click here.