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Portraits of Courage


In previous years, the rare disease community came together to celebrate and recognize the individuals, organizations, advocates and companies that move us forward in the fight against rare diseases. During the event, we honored patients and caregivers who have shown courage and made great strides in the fight against rare diseases.  The highly anticipated event was the time to take a moment of reflection and embrace the spirit of the rare disease community.

Make sure to stay tuned for our 2016 event, the Rare Impact Awards. Learn more here.

Highlights from Previous Years

2015 brought together industry leaders, physicians, patients, families and friends to celebrate the spirit of the rare disease community. NORD honored Dr. Francis Collins with the Lifetime Achievement Award, ten patients and parents who are affected by rare diseases, and others. Click here for more on 2015.