Feb. 25, 2016
TOPIC: Patients & Members
Notification (2/25/2016): Patient Assistance Programs
Posted by Jennifer Huron
Please note, if you are attempting to contact NORD’s call center and Patient Services department this morning and are experiencing any difficulty, please keep trying. We are experiencing interruptions due to an outage caused by heavy storms that moved through our area last night.
I am suffering with GBS and have been since Nov.12 2016. I was a massage therapist. I have had no income since getting GBS and am desperate for help. Thank you,Suzi Rose
Suzi,
We are sorry to hear of your suffering. At this time, NORD does not have a Patient Assistance Program to support patients with GBS. That may change in the future though so we do ask that you please keep an eye out for new programs on our website. Please refer to this report for now on our site on GBS. This refers to organizations who may be able to offer further resources and support: http://rarediseases.org/rare-diseases/guillain-barre-syndrome/