To Top

Openings from Member Organizations

NORD’s membership is comprised of a diverse array of patient organizations. Currently we have 280 members who together represent hundreds of diseases. NORD supports these member organizations in a multitude of ways, including listing their job openings on our website. Please see below for current job openings from our member organizations.

The Histiocytosis Association seeks an experienced and dynamic leader to serve as its next executive director. The mission of the Association is to raise awareness, provide educational and emotional support, and to fund research. The next executive director will provide visionary leadership to a growing, global organization that has a strong network of supporters committed to empowering the patients and families who live with histiocytic disorders. The Histiocytosis Association has selected Bloch & Reed Association Advisors to facilitate the search process. To be considered, candidates must submit a letter of interest and resume to [email protected] Preliminary application materials will be reviewed on a rolling basis, and interested candidates are encouraged to submit their materials as soon as possible.

For more information –

Joining the CHI team as the CHI Research Manager is an amazing opportunity for the right person to bring their talents to these exciting and impactful projects in the rare disease space: the HI Global Registry, the Centers of Excellence Program, and the additional CHI research programs. The CHI approach is collaborative and solutions oriented. The CHI Research Program Manager will work together with CHI staff and volunteer committee members to manage all aspects of these programs.

For more information –

PRISMS, Inc. is hiring a remote, part-time Program Assistant to help support our growing patient advocacy non-profit. This is a great position for someone interested in learning about the inner-workings of a small non-profit and experiencing many different aspects of non-profit management. Apply today at: