NORD’s membership is comprised of a diverse array of patient organizations. Currently we have 280 members who together represent hundreds of diseases. NORD supports these member organizations in a multitude of ways, including listing their job openings on our website. Please see below for current job openings from our member organizations.
The IFOPA is seeking a highly motivated and passionate individual with interest in and experience serving a nonprofit organization. The position will focus on providing support to the Executive Director and Board and managing digital communications with and for stakeholders including patients and families, clinicians and researchers, and donors and fundraisers. The successful candidate will have experience in digital communications and donor relations, pays attention to details, can manage several projects at once, can self-manage daily tasks and maintains a strong customer service focus.
Fibrous Dysplasia Foundation is seeking an Executive Director to serve the FD/MAS patient community by providing visionary leadership, strengthening the organization’s relationships with key domestic and international stakeholders, and overseeing high-quality execution of program, fundraising and administrative operations. Top candidates for the Executive Director role will have the ambition, vision and skills to continue the organization’s strong revenue growth trajectory, and lead the Fibrous Dysplasia Foundation through the next phase of transformative growth.
Barth Syndrome Foundation is seeking a Director of Research to provide strategic vision and execution to advance the Barth Syndrome Foundation’s (BSF) scientific research programs, putting affected individuals first and leading initiatives that deliver best-in-class science. He/she exhibits enormous compassion for the BSF community and affected individuals, integrating him/herself as a trusted advisor among our families.