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Openings from Member Organizations

NORD’s membership is comprised of a diverse array of patient organizations. Currently we have over 250 members who together represent hundreds of diseases. NORD supports these member organizations in a multitude of ways, including listing their job openings on our website. Please see below for current job openings from our member organizations.

Myelodysplastic Syndromes (MDS) are a group of diverse bone marrow disorders in which the bone marrow does not produce enough healthy blood cells. The MDS Foundation, Inc. was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS. The Development Director’s primary role is to ensure that the organization has the necessary funding and support to function and further the organization’s mission. The Director of Development for the MDS Foundation, Inc. will:

  • Determine the fundraising needs of the organization and develop and implement an effective fundraising plan to increase overall donations and create a major gift fundraising strategy that, combined, will contribute to 70% of overall donations to the organization within a three year timeframe. The current budget of MDS is $2.5 million and is expected to grow to $3.
  • Work in conjunction with the organization’s Executive Committee, Medical Boards, internal development team, and external patient and family volunteers to identify and cultivate relationships with prospects and donors, identify potential grant opportunities, and secure donations to carry out the mission and vision of the foundation to make potentially curative therapies available for all patients with MDS.
  • Assist the Director of Operations with the organization’s branding and public relations strategies.
  • Act as liaison with the organization’s Development Board.  Coordinate meetings, manage efforts, and build relationships.
  • Build and coordinate project-based support from pharmaceutical industry partners.
  • Manage a small development team.
  • Travel internationally to attend patient and professional hematology/oncology conferences.

Required Qualifications:

The qualified candidate will have at least five years of experience in a leadership development position, or similar fundraising experience, with the ability to close major gifts in excess of $10,000.  Prospective directors must be familiar with operational processes in non-profits and have the desire to take an enthusiastic, hands-on approach to all aspects of fundraising for this international healthcare organization.

To Apply:

Interested applicants should send a cover letter and resume to, with the subject line “DIRECTOR OF DEVELOPMENT– [Last Name]”

The Fibrous Dysplasia Foundation is hiring a part-time (20 hours per week) Program Assistant.
This is a great opportunity for individuals looking for a flexible, part-time position at a fast-growing nonprofit. Candidates will gain valuable experience in nonprofit communications, fundraising support and nonprofit administration, while supporting a great mission.
Interested applicants can apply for this position here.