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Openings from Member Organizations

NORD’s membership is comprised of a diverse array of patient organizations. Currently we have 280 members who together represent hundreds of diseases. NORD supports these member organizations in a multitude of ways, including listing their job openings on our website. Please see below for current job openings from our member organizations.

The National PKU Alliance, the leading organization in the US dedicated to improving the lives of individuals with PKU and working to pursue a cure, is hiring part-time PKU Patient Registry Coordinator. This work-at-home position will lead and coordinate all efforts related to the patient registry including data and project management, statistical analysis, working with researchers and industry to better understand the full spectrum of PKU, education and training materials, and ensuring accuracy and security of patient driven-data. View full description and how to apply at