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Openings from Member Organizations

NORD’s membership is comprised of a diverse array of patient organizations. Currently we have 280 members who together represent hundreds of diseases. NORD supports these member organizations in a multitude of ways, including listing their job openings on our website. Please see below for current job openings from our member organizations.

Fanconi Anemia Research Fund

The Family Services Director manages all aspects of family support and education. This position requires a minimum of three years of experience in a related field. A Bachelor’s degree in a related field is required and a Master’s degree in Social Work, Public Health, or a related field is preferred. Excellent written, organizational, and verbal communication skills are necessary to succeed in the position. The ability to understand Fanconi anemia to a level that enables practical assistance to families and individuals is mandatory. The Family Services Director will empower families and individuals using a high degree of emotional intelligence and the ability to facilitate connections to other families and individuals. Problem-solving skills and knowledge to efficiently deal with complex situations is necessary. This position is based in Eugene, OR and requires travel to conferences and meetings on an annual basis. The Family Services Director reports to and is evaluated by the Executive Director.

Click here to review the full job description

Association for Frontotemporal Degeneration (AFTD)

AFTD seeks qualified candidates for the new position of Senior Director of Scientific Initiatives (SDSI). As a key member of AFTD’s senior staff, the SDSI will inform organizational strategy and oversee research programs, while personally leading corporate research partnerships and implementation of AFTD’s agenda in the clinical science space. Appropriate candidates will bring expertise in clinical neuroscience and industry relations—areas that complement our team’s strengths in basic science, translational research, grants management, and registry science and operations. The position will be located at our headquarters in the Philadelphia area, and will also work closely with the staff of the FTD Disorders Registry based outside the area. Click here to review the full job description.

Autoimmune Encephalitis Alliance

Reporting to the Board of Directors, the Executive Director of AE Alliance strategically leads the organization and its staff in executing all aspects of its mission. Chief among all responsibilities is building relationships and inspiring investments in AE Alliance. Click here to review the full job description.