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Openings from Member Organizations

NORD’s membership is comprised of a diverse array of patient organizations. Currently we have 280 members who together represent hundreds of diseases. NORD supports these member organizations in a multitude of ways, including listing their job openings on our website. Please see below for current job openings from our member organizations.

CLOVES Syndrome Community is hiring a Program Assistant. We’re looking for a highly organized and motivated person to support the programs and work of our rare disease non-profit.

For more information – https://clovessyndrome.org/about-csc/jobs

NTSAD is looking for a Boston-based Director of Development to lead its efforts to raise funds to support affected families and to find a cure for rare genetic diseases (Tay-Sachs, Sandhoff, Canavan and GM1 gangliosidoses), with an annual goal of $1.2 million.

For more information –https://www.linkedin.com/company/nationaltay-sachs&allieddiseasesassocation/?viewAsMember=true

Joining the CHI team as the CHI Research Manager is an amazing opportunity for the right person to bring their talents to these exciting and impactful projects in the rare disease space: the HI Global Registry, the Centers of Excellence Program, and the additional CHI research programs. The CHI approach is collaborative and solutions oriented. The CHI Research Program Manager will work together with CHI staff and volunteer committee members to manage all aspects of these programs.

For more information – https://congenitalhi.org/jobs/