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Openings from Member Organizations

NORD’s membership is comprised of a diverse array of patient organizations. Currently we have 280 members who together represent hundreds of diseases. NORD supports these member organizations in a multitude of ways, including listing their job openings on our website. Please see below for current job openings from our member organizations.

International Waldenstrom’s Macroglobulinemia Foundation (IWMF)

IWMF is searching for a Chief Executive Officer to lead the IWMF team to a future with better tomorrows for people worldwide who are affected by Waldenstrom’s macroglobulinemia. To apply, send your resume and cover letter to Carl Harrington, Chairman of the IWMF Board of Trustees, at charrington@IWMF.com. More.

Association for Frontotemporal Degeneration (AFTD)

AFTD seeks qualified candidates for the new position of Senior Director of Scientific Initiatives (SDSI). As a key member of AFTD’s senior staff, the SDSI will inform organizational strategy and oversee research programs, while personally leading corporate research partnerships and implementation of AFTD’s agenda in the clinical science space. Appropriate candidates will bring expertise in clinical neuroscience and industry relations—areas that complement our team’s strengths in basic science, translational research, grants management, and registry science and operations. The position will be located at our headquarters in the Philadelphia area, and will also work closely with the staff of the FTD Disorders Registry based outside the area. Click here to review the full job description.

International FOP Association

The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is currently accepting applications for the FOP Registry Project Manager position. The IFOPA is seeking a self-motivated individual to manage a global registry on behalf of the FOP research community. The FOP Registry serves to secure the improvement of patient outcomes by developing a robust, comprehensive and global dataset on FOP, accelerating the development, approval and access to new therapies. This position works 3 to 4 days per week and the Registry Project Manager will work from home, which can be located anywhere in the United States. The project manager will report to the Director of Research Development & Partnerships. More.