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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

aHUS Alliance


c/o Bill Biermann
One Campbell Plaza Suite 2B
St. Louis, MO 63139 USA





Email Address

[email protected]


The Foundation for Children with Atypical HUS is a non-profit organization that provides information to families affected by this disease, provides support for families and loved ones, maintains a registry of cases in the United States, and raises funds for research. The letters "HUS" stands for "hemolytic uremic syndrome". Hemolytic refers to the blood, and uremic refers to kidney function. Regular HUS, a rare condition, is caused by a bacterium such as e-coli. Atypical HUS is a rare condition that is not caused by an external agent. Instead, a chain of events, such as blood clotting, begins that causes damage to the vascular system, red blood cells, lowering platelet counts, and ultimately, also affects kidney function. The Foundation for Children with Atypical HUS has two websites: one is an interactive site: and the other is an informational site:

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