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The Foundation for Children with Atypical HUS is a non-profit organization that provides information to families affected by this disease, provides support for families and loved ones, maintains a registry of cases in the United States, and raises funds for research. The letters "HUS" stands for "hemolytic uremic syndrome". Hemolytic refers to the blood, and uremic refers to kidney function. Regular HUS, a rare condition, is caused by a bacterium such as e-coli. Atypical HUS is a rare condition that is not caused by an external agent. Instead, a chain of events, such as blood clotting, begins that causes damage to the vascular system, red blood cells, lowering platelet counts, and ultimately, also affects kidney function. The Foundation for Children with Atypical HUS has two websites: one is an interactive site: www.atypicalhus.org and the other is an informational site: www.atypicalhus.50megs.com.
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