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American Porphyria Foundation



Address

4900 Woodway, Suite 780
Houston, TX 77056-1837

Phone

7132669617

Fax

7138409552

800 Number

8662733635

Email Address

porphyrus@aol.com

Description

The American Porphyria Foundation (APF) is a national voluntary health organization established in 1981 to enhance public awareness of the porphyrias and to aid in advancing treatments of these disorders. Porphyria is a group of rare genetic disorders characterized by disturbances of porphyrin metabolism. The foundation assists people with porphyria and physicians by serving as an information source and exchange. It also provides individuals with the opportunity to participate in research, support groups, political action programs, seminars, and fund-raising projects. The foundation produces a variety of publications including a general brochure and several disease specific brochures.

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