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American Porphyria Foundation


4915 St. Elmo Ave, Suite 200
Bethesda, MD 20814 USA





800 Number


Email Address

[email protected]


The American Porphyria Foundation (APF) is a national voluntary health organization established in 1981 to enhance public awareness of the porphyrias and to aid in advancing treatments of these disorders. Porphyria is a group of rare genetic disorders characterized by disturbances of porphyrin metabolism. The foundation assists people with porphyria and physicians by serving as an information source and exchange. It also provides individuals with the opportunity to participate in research, support groups, political action programs, seminars, and fund-raising projects. The foundation produces a variety of publications including a general brochure and several disease specific brochures.

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