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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

American Syringomyelia & Chiari Alliance Project, Inc.


P.O. Box 1586
Longview, TX 75606-1586





800 Number


Email Address

[email protected]


The American Syringomyelia & Chiari Alliance Project (ASAP), which was established in 1988, is a national nonprofit organization that functions as a clearinghouse for information on syringomyelia, a rare progressive condition characterized by the presence of abnormal fluid-filled cavities within the spinal cord and Chiari malformation. The organization provides information to people with syringomyelia and Chiari malformation, and seeks to increase public awareness of the disorders. The project also encourages medical research and seeks to raise funds for the investigation into the possible causes of, and the development of new treatments for, the disorder. The American Syringomyelia Alliance Project publishes a newsletter and produces informational materials and videotapes. It also hosts an annual conference and has a self-help network project.

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