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American Syringomyelia & Chiari Alliance Project, Inc.



Address

P.O. Box 1586
Longview, TX 75606-1586

Phone

9032367079

Fax

9037577456

800 Number

8002727282

Email Address

info@asap.org

Description

The American Syringomyelia & Chiari Alliance Project (ASAP), which was established in 1988, is a national nonprofit organization that functions as a clearinghouse for information on syringomyelia, a rare progressive condition characterized by the presence of abnormal fluid-filled cavities within the spinal cord and Chiari malformation. The organization provides information to people with syringomyelia and Chiari malformation, and seeks to increase public awareness of the disorders. The project also encourages medical research and seeks to raise funds for the investigation into the possible causes of, and the development of new treatments for, the disorder. The American Syringomyelia Alliance Project publishes a newsletter and produces informational materials and videotapes. It also hosts an annual conference and has a self-help network project.

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