The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
3015 E. New York Street
Suite A2 #285
Aurora, IL 60504 USA
The Angelman Syndrome Foundation, Inc., (ASF) is a non-profit organization. Its mission is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families, and other concerned parties. Angelman syndrome is a rare genetic disorder characterized by mental and motor retardation, absence of speech, muscular abnormalities, unprovoked laughter, and characteristic facial abnormalities. Established in 1992, the Angelman Syndrome Foundation offers national, regional, and local support systems for affected individuals and their families. It also promotes and supports research on the diagnosis, treatment, management, and prevention of Angelman syndrome. The Angelman Syndrome Foundation offers a variety of educational and support materials through its web site, regular newsletter, brochures, pamphlets, and audiovisual materials.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.