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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Angioma Alliance


Address

520 West 21st Street
Suite G2-411
Norfolk, VA 23517-1950

Phone

7576230615

Fax

7576230615

800 Number

8664325226

Email Address

info@angiomaalliance.org

Description

The Angioma Alliance (AA) is a non-profit, charitable organization created by people affected by cavernous angioma. Cavernous angiomas are clusters of abnormal blood vessels found in the brain, spinal cord, and, rarely, other areas of the body. They can cause seizures, stroke symptoms, hemorrhages, and headache. Its goals are: 1) to ensure that everyone with cavernous angioma has access to informational materials written in layperson's terms 2) to provide support for persons affected by the illness 3) to promote research and 4) to educate the public so that those affected by the illness will receive understanding and support. Its web site provides information about the illness, networking/support opportunities, updates on research, and information about participating in ongoing research studies. The alliance distributes patient education materials through neurosurgeons, neurologists, and genetics professional nationally. Angioma Alliance sponsors national family educational conferences, exhibits at medical conventions, and offers a toll-free number for support and education.

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