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ARPKD/CHF Alliance


PO Box 70
Kirkwood, PA 17536 USA





800 Number


Email Address

[email protected]


The ARPKD/CHF Alliance is a non-profit, self-help organization dedicated to providing information and support to individuals and families affected by autosomal recessive polycystic kidney disease, a chronic and progressive disease that causes eventual kidney failure and liver abnormalities (congenital hepatic fibrosis). There is no cure, and life-threatening complications may develop soon after birth. Many parents receive the diagnosis before the baby is born. The alliance provides information, networking opportunities, and support for basic and clinical research.

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