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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Genetic Alliance Australia



Address

C-/ The Garvan Institute of Medical Research
Level 6, 384 Victoria Street
Darlinghurst NSW, 2010 Australia

Phone

+61 2 9295 8365

Fax

+61 2 9295 8181


Description

Genetic Alliance Australia facilitates support for those affected directly or indirectly by genetic/rare conditions throughout Australasia. We are the peak umbrella organisation for conditions so rare that no support group exists. We provide support in the form of information, education (families and medical professionals), counseling, seminars, sibling workshops, conferences, contact, and advocacy.

We have over 1300 conditions listed on our database (see http://www.geneticalliance.org.au/conditions.php) – we provide support and information for all families and individuals affected by genetic and rare conditions.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.