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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Genetic Alliance Australia


C-/ The Garvan Institute of Medical Research
Level 6, 384 Victoria Street
Darlinghurst NSW, 2010 Australia


+61 2 9295 8365


+61 2 9295 8181

Email Address

[email protected]


Genetic Alliance Australia facilitates support for those affected directly or indirectly by genetic/rare conditions throughout Australasia. We are the peak umbrella organisation for conditions so rare that no support group exists. We provide support in the form of information, education (families and medical professionals), counseling, seminars, sibling workshops, conferences, contact, and advocacy. We have over 1300 conditions listed on our database (see – we provide support and information for all families and individuals affected by genetic and rare conditions.

Please Note

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