Ataxia Telangiectasia Children’s Project, Inc (A-T)

The A-T Children’s Project (Ataxia Telangiectasia Children’s Project) (ATCP) is a national, non-profit organization that was established in 1993. Ataxia-telangiectasia is a rare, inherited, progressive disorder characterized by an impaired ability to control voluntary movement (ataxia); rapid, involuntary eye movements (nystagmus); permanent dilation of certain small blood vessels, resulting in small red lesions on the skin and other areas (telangiectasia); and immune deficiency, causing an increased predisposition to certain bacterial infections and malignancies. The purpose of the project is to raise funds to accelerate scientific research aimed at finding a cure or a therapy that would improve the lives of affected children. The specific goals include finding a cure or therapy; increasing awareness of the disorder; and encouraging and funding scientific research directed at specific treatments. The project’s activities also include the establishment and maintenance of a cell-bank for unlimited access by research scientists. The A-T Children’s Project has established a National AT Clinical Center at Johns Hopkins Hospital, Baltimore, MD.