The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
5 Fenton Place
Bouvard, WA 6211 Australia
+61 8 9582 1676
The objects of the Association are - (a) to promote knowledge and understanding of the condition known as Benign Essential Blepharospasm; (b) initiate and support research into the awareness of Benign Essential Blepharospasm (BEB) by health professionals especially front line practices like GPs, optometrists and pharmacists; (c) provision of information to the above health professionals, sufferers and their carers about the condition, its treatment, sources of the treatment and ongoing support; (d) build and maintain a comprehensive website as a source of all relevant data relating to the condition including personal case studies; (e) provide links to medical research into BEB being carried out worldwide; (f) invite sufferers to become members of our support group and to enjoy fellowship of other sufferers; (g) provide newsletters and hold meetings where members can share experiences about living with the condition; (h) build and maintain a list of known treaters of the condition throughout Australia; (i) Build and maintain a list of other support groups like ours to allow sharing of effective programs; (j) Encourage and assist with a the formation of other support groups where there are clusters of sufferers with no local support.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.