Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Cardio-Facio-Cutaneous International (CFC)



Address

502 Delaware Avenue
Delmar, NY 12054 USA

Phone

573-207-5105

Email Address

info@cfcsyndrome.org

Description

The Cardio-Facio-Cutaneous International is an 501(c)(3) international support group for families', doctors, teachers, therapists, and other involved individuals who are assisting with children born with the very rare cardio-facio-cutaneous syndrome. The support group acts as a clearinghouse for information on all aspects of CFC syndrome. Once families register, they are included on a mailing list for newsletters, CFC Parent's Guide, and information on current research and conferences.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.