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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


CDG Care


Address

PO BOX 38832
Colorado Springs, CO 80937 USA

Phone

866-295-7910

Email Address

info@cdgcare.com

Description

CDG CARE is a nonprofit organization founded by parents seeking information and support for a group of disorders known as Congenital Disorders of Glycosylation (CDG). Our mission is to promote greater awareness and understanding of CDG, to provide information and support to families affected by CDG, and to advocate for scientific research to advance the diagnosis and treatment of CDG. The strategy of CDG CARE is to disseminate information through a modern website, publish and distribute a semi-annual e-newsletter, organize a bi-annual North American CDG family conference, and collaborate globally with medical professionals and nonprofit associations worldwide. To learn more about CDG CARE and our programs, like us on the CDG CARE Facebook page and visit our website at cdgcare.com.

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