CDG Care

The CDG Family Network is a non-profit organization founded by parents seeking information and support for those affected by a group of disorders known as congenital disorders of glycosylation (CDG). Members of the network exchange information with families and physicians, locate new families, and raise awareness among the medical community. The CDG disorders are a group of newly discovered metabolic diseases that cause abnormal tissue and organ development affecting the entire body, especially the function of the central nervous system and the peripheral nervous system.