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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


CHERUBS – The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support


Address

3650 Rogers Road, #290
Wake Forest, NC 27587

Phone

9196100129

Fax

8154259155

800 Number

8552342229

Email Address

info@cdhsupport.org

Description

The CHERUBS - Association of Congenital Diaphragmatic Hernia Research, Awareness and Support is an international support group for the families and physicians of children who are born with congenital diaphragmatic hernias (CDH). Congenital diaphragmatic hernia is a rare condition, present at birth that is characterized by the protrusion of organs from the abdomen into the chest through an opening in the muscle that divides the two. Established in 1993, CHERUBS is a volunteer organization associated with the March of Dimes, the Association of Birth Defect Children, Inc., and the California Birth Defects Monitoring Program. It serves people in the United States, Canada, Great Britain, and Ireland. CHERUBS offers a "Parent Reference Guide," periodic newsletters, and brochures; has a parent-to-parent match up program; and provides referrals. In addition, the organization maintains a research library and compiles data from research surveys.

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