Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Children’s Cardiomyopathy Foundation



Address

PO Box 547
Tenafly, NJ 7670 USA

Phone

8668082873

Fax

2012277016


Description

The Children's Cardiomyopathy Foundation (CCF) is a 503(C)(3) national non-profit organization dedicated to finding causes and cures for pediatric cardiomyopathy through the support of research, education, and increased awareness and advocacy. CCF started in 2002 with one family's determination to call attention to this poorly understood heart disease. Since then, CCF has committed more than $1.8 million to research and treatment initiatives and grown into a global community of families, physicians and scientists focused on improving diagnosis, treatment and quality of life for children with cardiomyopathy. CCF brings medical and health experts together to advance knowledge of cardiomyopathy and develop better support services and resources for affected families. Guided by a medical advisory board, CCF supports a research grant program and sponsors scientific meetings and working groups. CCF also provides a wide range of patient support resources including educational materials, newsletters, information on specialists, a community forum, and a comprehensive website with medical information, coping and healing tips and relevant resource links.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.