The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
5526 West 13400 South, #510
Salt Lake City, UT 84096
The Cholangiocarcinoma Foundation is a 501(c)(3) voluntary, non-profit organization run solely by volunteers who have lost a loved one to cholangiocarcinoma or who are suffering from cholangiocarcinoma and are surviving. Their mission is to provide help for patients and caregivers, advocate for those afflicted and educate those who do not understand. They also strive to find a cure, improve the quality of life for those affected by bile duct cancer, and examine ways to improve diagnosis and early detection and advance therapies for prolonging life. Cholangiocarcinoma, also called bile duct cancer, arises from the tissues in the bile duct, a tube that connects the liver and gallbladder to the small intestine. The bile duct allows bile that is made in the liver and stored in the gallbladder to flow into the small intestine. Bile is a liquid that helps to both break down fats found in foods and to help rid the body of waste material filtered out of the bloodstream by the liver.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.