The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
330 W State Street
Geneva, IL 60134 USA
The Cicatricial Alopecia Research Foundation (C.A.R.F.) is a non-profit rare disease organization that provides funds for research to find effective treatments and a cure for cicatricial (scarring) alopecia, a diverse group of rare disorders in which the hair follicle is destroyed and replaced with scar tissue. The result is permanent hair loss. Cicatricial alopecia occurs in otherwise healthy men and women of all ages and is seen worldwide. C.A.R.F., in addition to providing funds to research, supports education and advocacy and works to raise public awareness.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.