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Amersfoort, 3818 BV The Netherlands
The CMTC-OVM is an organization based in The Netherlands that provides information and other services to those affected with, or working on, van Lohuizen syndrome, which is also known as cutis marmorata telangiectatica congenita (CMTC-OVM). On its web site and in its print materials, the organization provides information in English and German, as well as Dutch. CMTC-OVM, first described by a Dutch pediatrician in 1922, is a skin affliction that produces a marbled skin and is sometimes associated with other conditions. The main goals of the organization are to increase the well being of those affected by the disease and stimulate research into the causes and treatment of CMTC-OVM. We are covering not only CMTC but also Other Vascular Malformations such as Klippel-Trenaunay Syndrome (KTS) and Diffuse Capillary Malformation with Overgrowth (DCM). Furthermore we support not only patients but also their families and healthcare providers in a holistic way (medically, psychologically and psychosocially).
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