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Usher Syndrome Coalition


Address

63 Great Road
Suite 207
Maynard, MA 01754

Phone

978-637-2625

Fax

978-637-2618

Email Address

info@usher-syndrome.org

Description

The Coalition for Usher Syndrome Research is a non-profit organization dedicated to supporting Usher syndrome researchers and families. The Coalition believes that the first step to finding viable treatments for Usher syndrome is the development of an Usher syndrome community. The Coalition does not provide direct financial support to researchers but rather strives to provide support to families and assistance to researchers. Connecting families and researchers is crucial to furthering the understanding of Usher syndrome, advancing research, and providing hope for the future. Usher syndrome is a rare inherited disorder primarily characterized by deafness due to an impaired ability of the auditory nerves to transmit sensory input to the brain accompanied by retinitis pigmentosa, a disorder that causes progressive loss of vision.

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