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c/o Cory Mauck
3134 Bayberry Street
Wichita, KS 67226
The Crigler-Najjar Association, a group of families who have been affected by Crigler-Najjar syndrome, provides information and support to patients and families worldwide who are affected by Crigler-Najjar syndrome (CNS), as well as to physicians, researchers, and hospitals involved in providing care for individuals with this or other liver disease. Crigler-Najjar syndrome is a rare metabolic disorder that is caused by a liver enzyme deficiency. There are fewer than 20 known patients in the United States and fewer than an estimated 200 worldwide. Children with CNS are unable to eliminate bilirubin from their bodies and therefore must undergo daily 12-hour exposure to special blue lights. The Crigler-Najjar Association has funds available for those in desperate need of financial assistance.
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