Cure CMD (Congenital Muscular Dystrophy)

The Cure CMD’s is a voluntary, non-profit organization whose mission is to bring research, treatments and in the future, a cure for the Congenital Muscular Dystrophies. Cure CMD will achieve this mission by working globally together with dedicated parent, government and research advocates. By focusing on this mission, Cure CMD will find and fund high potential research and clinical trials. Success will be determined by clinical applications that improve the lives of those afflicted with the CMDs. Cure CMD provides website support through explanations of current research, an explanation of the disease subtypes and links to both yahoo support groups and an online forum. PDF documents of current CMD review articles are accessible on the website. Cure CMD is working jointly with CMD experts to build a CMD patient registry. Cure CMD will seek to improve medical care, by formulating best medical practices and defining and improving access to genetic testing. Congenital Muscular Dystrophies are a group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments.
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