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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Cystic Fibrosis Research, Inc.


Address

Bayside Business Plaza
2670 Bayshore Parkway
Mountain View, CA 94043 USA

Phone

6504049975

Fax

6504049981

Email Address

cfri@cfri.org

Description

The Cystic Fibrosis Research, Inc., (CFRI) is an independent, non-profit, voluntary health organization dedicated to offering emotional and educational support to families living with cystic fibrosis (CF). Cystic fibrosis is a genetic disorder that affects many exocrine glands of the body including the sweat glands, salivary glands, and glands within the pancreas and respiratory system. Associated characteristics include susceptibility to repeated lung infections, an impaired ability to absorb fats and other nutrients from food, abnormally salty sweat containing elevated levels of chloride and sodium, and/or other abnormalities. Cystic Fibrosis Research, Inc., is committed to providing a variety of educational and support programs for affected families including mail and telephone referrals and support services, regular membership meetings, parent support groups, CF support groups for ages 13 to adult, an annual conference, and a family retreat. The organization also funds cystic fibrosis research at major research centers in the U.S., supports ongoing gene therapy research, and offers community educational programs.

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