Cystinuria Support Network

The Cystinuria Support Network (CSN) is a national, self-help organization that functions as a mutual aid and support network for people with cystinuria and their caregivers. Cystinuria is a rare genetic disorder characterized by excessive urinary excretion of the amino acid cystine and other amino acids and the formation of urinary cystine kidney stones. The network was developed to provide a central resource to encourage mutual support and provide practical advice to affected individuals. The organization allows people to come together with their own unique strengths, hopes and concerns to offer support and understanding to one another. Established in 1994, the Cystinuria Support Network publishes a periodic newsletter with input from group participants and medical professionals.