Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Degos Patients’ Support Network


Address

28 Glenville Road
Rustington
West Sussex, BN16 2EA United Kingdom

Phone

441903787737

Fax

441903772954

Email Address

judith@degosdisease.com

Description

The Degos Patients' Support Network is a self-help group existing to inform and support patients with the diagnosis of Degos disease, also known as malignant atrophic papulosis or Kohlmeier-Degos disease. This is a rare systemic disorder that causes small- and medium-sized arteries to become blocked. It can manifest or progress in two forms. In the first, characteristic skin lesions appear. In the second, lesions may appear in the small intestine, central nervous system, or other organs.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.