Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


EDS Today


Address

PO Box 1382
Mays Landing, NJ 8330 USA

Phone

6096253182

Email Address

info@edstoday.org

Description

The EDS Today is a voluntary, 501(c)3 organization founded in 2000. Its goal is to provide information and support to patients and families living with Ehlers-Danlos syndrome, a group of genetic connective tissue disorders characterized by defects of the major structural protein in the body (collagen). Symptoms and findings include abnormally loose, flexible joints; thin, stretchy skin; and fragility of the skin, blood vessels, and other body tissues. EDS Today is staffed 100 percent by volunteers. All donations are used to support its mission of providing information and support to people affected by EDS and to members of the medical community working to help them.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.