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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

EDS Today


PO Box 1382
Mays Landing, NJ 8330 USA



Email Address

[email protected]


The EDS Today is a voluntary, 501(c)3 organization founded in 2000. Its goal is to provide information and support to patients and families living with Ehlers-Danlos syndrome, a group of genetic connective tissue disorders characterized by defects of the major structural protein in the body (collagen). Symptoms and findings include abnormally loose, flexible joints; thin, stretchy skin; and fragility of the skin, blood vessels, and other body tissues. EDS Today is staffed 100 percent by volunteers. All donations are used to support its mission of providing information and support to people affected by EDS and to members of the medical community working to help them.

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