The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
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EP is a monthly magazine published for families and professionals. Its editorial mission is to reach out to families with members of all ages with disabilities and special health care needs; to empower families and professionals by providing practical information, quality articles and resources; so parents, professionals, people with disabilities, and advocates can learn from one another to serve all special needs families. It is available now for free via email subscription and available to be read to those with visual impairments.
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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.