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Fanconi Anemia Research Fund, Inc.



Address

1801 Willamette St
Suite 200
Eugene, OR 97401 USA

Phone

5416874658

Fax

5416870548

800 Number

8008284891

Email Address

info@fanconi.org

Description

The Fanconi Anemia Research Fund is a non-profit organization that raises funds for medical research into Fanconi anemia, an inherited condition that leads to a deficiency of certain blood cells that are produced by the bone marrow. Established in 1989, the organization supports numerous investigators who are working on various approaches to gene identification and therapy. The Fanconi Anemia Research Fund sponsors an annual international Fanconi Anemia Research Symposium to stimulate scientific progress and collaborative research among scientists. Additionally, the fund develops and maintains a communication network that supplies information and support to affected families and their physicians. Educational materials include the "FA Handbook", "Standards for Clinical Care" and twice yearly Family Newsletters and a Science Letter. The fund also moderates an electronic list serve for FA patients and their parents.

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