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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


GBS/CIDP Foundation International



Address

The Holly Building
104 1/2 Forrest Avenue
Narberth, PA 19072 USA

Phone

6106670131

Fax

6106677036

800 Number

8662243301

Email Address

info@gbs-cidp.org

Description

The GBS/CIDP Foundation International, which was established in 1980, provides emotional support and assistance to people affected by this rare disease of the peripheral nervous system. The foundation currently consists of approximately 18,000 members in 160 chapters. It arranges personal visits to affected individuals in hospitals and rehabilitation centers; fosters research into the cause, treatment, and other aspects of the disorder; and directs affected individuals with long-term disabilities to resources for vocational, financial, and other forms of assistance. The foundation's medical advisory board includes neurologists who are active in Guillain Barré research, physicians in rehabilitation medicine, and physicians who have had Guillain Barré syndrome. The GBS/CIDP Foundation International also supplies informational materials such as a directory, newsletters, and other literature about the disorder, including a comprehensive 55-page booklet entitled "An Overview for the Layperson."

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