The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Genetic Disorders UK is a UK registered charity with a vision to improve the lives of individuals and families affected by genetic disorders. Our mission is to be the leading source of information and support for both those affected by a genetic disorder, and the charities and patient groups that support them, by bringing together everyone’s combined experience in a place it can be shared. Genetic Disorders UK is run by a small team that also organises the annual UK Jeans for Genes Day fundraising event Twitter Handle: @GeneticDisUK Facebook Name: Genetic Disorders UK
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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.