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Cure HHT Foundation



Address

P.O. Box 329
Monkton, MD 21111 USA

Phone

410-357-9932

Fax

410-472-5559

Email Address

hhtinfo@curehht.org

Description

The Cure HHT Foundation International, Inc., is a non-profit organization dedicated to increasing public and professional awareness and understanding of hereditary hemorrhagic telangiectasia (HHT), also known as Osler Weber Rendu syndrome. This is an inherited vascular (blood vessel) disorder characterized by direct connections between arteries and veins with no intervening capillaries, or by the dilation of small vessels. These telangiectases occur in various organs of the body such as the lungs, brain, liver, GI tract, nose, mouth, lips, fingers and toes. The HHT Foundation supports ongoing medical research into the causes, prevention, and treatment of HHT, and offers patient education materials and referrals from a web site and through a toll-free number and an international number. Educational information for medical professionals and for patients is available by mail, via the web site and by newsletter.

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